Terms & Conditions
Last updated: October 9, 2025
1. Introduction
These Terms and Conditions (“Terms”) govern your access to and use of the website www.thepatientvoicedatabase.org (the “Site”) operated by The Patient Voice Database (“we”, “us”, “our”).
By accessing or using the Site, you agree to be bound by these Terms and by our Privacy Policy and Cookie Policy. If you do not agree with these Terms, please do not use the Site.
The Site aims to connect individuals (“Users”) with opportunities to participate in clinical research, surveys, and patient panels, and to provide general information about ongoing medical research.
2. Purpose of the Platform
The Patient Voice Database is an informational and matching platform that allows users to:
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Discover ongoing or upcoming research opportunities (trials, surveys, or panels);
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Learn about clinical research topics relevant to their condition;
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Express interest in being contacted for participation.
The platform does not conduct or sponsor clinical trials itself. Participation in any research activity always requires a separate consent process handled by the official research organization.
3. Registration and User Account
To access personalized features (e.g., patient matching), you may need to create an account. When registering:
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You must provide accurate, current, and complete information.
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You agree to keep your login details confidential and not share them with third parties.
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You are responsible for all activities carried out under your account.
We reserve the right to suspend or terminate any account that violates these Terms or is used fraudulently.
4. Data Protection and Privacy
We take your privacy seriously. Personal information collected through the Site is processed in accordance with our Privacy Policy.
By using the Site, you consent to the collection and use of your data as described therein.
5. Information on Clinical Research
The information provided on the Site is for educational and informational purposes only.
It does not constitute medical advice, diagnosis, or treatment.
Users are encouraged to consult their healthcare provider before making any medical decisions or participating in a study.
6. Accuracy of Information
We strive to ensure that the information available on the Site is accurate and up-to-date. However, we do not guarantee that:
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All study details are complete or error-free;
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All research opportunities are currently active or recruiting;
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All eligibility criteria are exhaustive or up to date.
We rely on publicly available sources and updates from official registries, which may change at any time.
7. Intellectual Property
All content available on the Site (texts, graphics, logos, icons, databases, code, etc.) is the property of The Patient Voice Database or its licensors and is protected by applicable copyright and intellectual property laws.
You may view, download, and print content for personal use only.
Any reproduction, modification, or redistribution for commercial purposes is strictly prohibited without prior written consent.
8. Prohibited Uses
You agree not to use the Site:
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For unlawful purposes or in violation of these Terms;
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To upload or transmit any harmful code or spam;
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To collect data from other users without consent;
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To misrepresent your identity or impersonate another person.
We reserve the right to take appropriate action (including account suspension or legal steps) in case of misuse.
9. Availability and Service Changes
We strive to maintain the Site’s availability and performance, but we cannot guarantee uninterrupted access.
We may temporarily suspend the Site for maintenance or updates without prior notice.
We may also modify or discontinue certain features at any time, without incurring liability.
10. Limitation of Liability
To the fullest extent permitted by law, The Patient Voice Database and its representatives shall not be liable for:
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Any direct or indirect damages resulting from your use or inability to use the Site;
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The accuracy or completeness of third-party information (e.g., clinical trial data);
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Any decisions made based on information found on the Site.
Use of the Site is entirely at your own risk.
11. Third-Party Links and Services
The Site may contain links to external websites (e.g., research institutions, partner organizations).
We are not responsible for the content, privacy practices, or accuracy of these external sites.
Accessing them is at your own discretion.
12. Modifications to the Terms
We may revise these Terms from time to time to reflect changes in our services or legal requirements.
The updated version will always be available on this page with a new “Last updated” date.
Continued use of the Site after such updates constitutes your acceptance of the revised Terms.
13. Governing Law and Jurisdiction
These Terms are governed by the laws of Belgium.
Any dispute arising out of or in connection with these Terms shall fall under the exclusive jurisdiction of the courts of Brussels, Belgium.
14. Contact
For questions or concerns about these Terms & Conditions, please contact us at: